Death, Love, Sorrow, Guilt

Daybreak is upon us.  Sleep eludes me, though I need it badly.  There’s chemo this morning, but more importantly… my brother is dying.  He was admitted on the eve of his birthday.  I will forever regret not going to the hospital on his birthday, the last day he was effectively alert.  He survived surgery last night, which I hope removes some of his pain, even if it casts more uncertainty into a dire situation.  His kidneys are shot, and his heart is only functioning at 10%.  The surgery was to remove infection that was sure to kill him.  Even if that’s a success, how can he go on?

One of the deepest and most complex love of one’s lives can be that of a sibling.  I imagine that most who know him experience the divide of the person we knew and loved, before the beast of mental illness stole his mind and body and replaced it with an alien.  Occasionally we would see a glimmer of the real person we cherish, but in the past two decades, more often than not, we tried to cope with what remained.  My mother has been steadfast and devoted in her care of him.  At her advanced age, it’s been a miracle she’s able to visit him, bring him food, take him around, put up with his erratic and abusive behavior.  That is the power of love, to know and believe that underneath it all is the wonderful, brilliant person, suppressed by illness – and have faith that whatever kindness and love one shows somehow brings comfort and joy to that core being, even for just a second.

I am racked with a storm of emotion and pain.  My brother and I were not close until high school/college years, at which point we connected on pretty much every level.  I’ve often wanted to write about him – he was brilliant and colorful, full of promise, vulnerable and naive, a true Romantic.  Someone he knew at Berkeley said to me years ago, “The more intelligent the person, the more fragile the psyche.”  We used to chuckle and wonder at all the (once-brilliant) grad students who had gone off the deep end and now wandered the streets of Berkeley, shouting things (“Rare!”), digging in trash cans, sleeping in People’s Park.  This friend’s argument about my brother being a Romantic in the pure sense of the word was enlightened, and yet I failed to get past it and realize the very real disease eating his fragile psyche.  Each thought brings with it fresh and unbearable sorrow…

Why am I using past tense?  I think he’s still alive.  As far as I know he’s breathing, on life support.  We saw him yesterday, intubated, before surgery.  I wondered if I should take a picture, and decided this was not how I wanted anyone to remember him.  If this was the last time I saw him alive, the image was burned into memory forever.  I have many good memories – I choose to memorialize those.

Last night my sister got drunk, my husband joined her in light conversation, and I was left to research cremation services.  At 1am they were talking loudly about places to ride ATVs.  I guess this is how things will go.

I’m not the kind of person who’s able to maintain lightheartedness in the face of death – especially of someone so dear to me.  My ability to detach and be stoic went away when I got cancer.  I believe I truly understand the meaning of Life is precious.  And yet I’m beating myself up over all the time I didn’t bring my brother love and comfort, all the time that passed between us when I didn’t communicate with him.  And how my and my family’s ignorance allowed his mental illness to go undiagnosed for so long that once it finally happened, there was little we could do to control it.  Maybe there’s not much that can be done anyway.  I’m told that’s the case and I shouldn’t dwell.  But the mind goes to these things, and sorrow makes the guilt more intense.

I’ve been suffering for a long time, worrying about my brother, my mother, my father.  I think – through my own illness, at least I’ve had some comfort.  I bristle at the insensitivity of those closest to me that they don’t try to give me greater comfort under the circumstances, that they are so clueless and detached about my condition.  The minute I show any signs of recovery, people expect an immediate return to the status quo… I complain, but I am reminded about the long years of poverty and deprivation and utter discomfort that my brother has endured due to mental illness, and I deserve to be flogged for all my pettiness.  I want to flog everyone around me who complains about all their ridiculous pettiness as well.  I want to scream, and cry, and point out how much comfort everyone has compared to my brother.  While we complain about the discomfort he has brought upon us, all I can think of is how much he deserves some small amount of comfort, joy, beauty, intellectual stimulation – which was so important to him, even through his mental illness.  I just want him to get some real rest, to be free of pain, suffering, misery.  Loneliness.  He has been lonely for so long, and alone.  For my part, I feel like I’ve not done everything I could to alleviate that.  My mother, bless her heart, has been his angel and saving grace.  Her job has been thankless, and we don’t deserve her.  If there ever was a saint, it would be this amazing woman.  So here the two of them are bound up together in suffering and survival.

Years ago she came through a protracted and severe illness which she barely survived.  Like my brother, she stubbornly refused to get medical care until it was almost too late.  The illness made her hair white overnight.  Through her tears and despair, she told me she was tired and didn’t want to go on living, but she wanted to survive so she could help my brother as long as possible.  She used to say no one loved my brother more than me, but compared to the depth and strength of her love and loyalty, mine is but a flicker.

I am exhausted, and heartbroken.  I just want my brother to be restored to the incandescent being he was, to wholeness.  If that means death, so be it.  I don’t know if death just turns us back to dirt, or if our souls truly do transcend to some collective unconscious or another dimension or whatever.  I just want whatever will give my brother comfort.

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7 thoughts on “Death, Love, Sorrow, Guilt

  1. Jazz,

    My thoughts and prayers are with you and your family at this difficult time.

    Please don’t feel guilty. You have absolutely no control over the hand of cards fate deals you. We go through life the best we can, and we’re all human and we’re all messy. Celebrate the time you shared with your brother. Do not – DO NOT – mourn what could have been. That line of thought only leads to despair.

    I mean, you could have bought a lottery ticket every day of your entire life too, and won the lottery, and solved everyone’s problems… right? No. Don’t think about what you could have done differently. There’s no point, and you’ll just go insane. Cherish the memories you have of your brother, as you’ve just shared them with me.

    Do grieve, cry, rail at fate, whine, and express your deepest sorrow. But please, please, don’t feel guilty. You’ve got nothing to feel guilty about.

    Love,

    Nichole

  2. I am sorry Jazz…no-one deserves such crappy luck but at least your brother is loved and not alone. I would love to hear more stories about him. As for you well you inspired me to look into adopting a little blind cat that no-one wanted because I take strength from the strength you show here and i figured i could give a little back.

  3. Oh Jazz, your pain speaks so clearly through your words. Mental illness remains one of the darkest places in our world, and sufferers face so much displacement from all the things we hold dear. But do try and remember that even those with mental illness can find joy and love in the corners of the world they live in, and hopefully your brother is aware of the depth of your mums and your love for him.

    Gail

  4. I am so very sorry to hear about your brother. I am praying for him, you and the family. I regret that as cousins I have never met and gotten to know him. Don’t beat yourself up for what you think you should have said or done. God knows you have put everyone ahead of yourself even as you go thru your own difficult times. You have done so much for them. I understand how you feel as I too worry about my dad, sister and brother. No matter what we do or how much we do for them, it just never seems to be enough. But we have to take comfort in the fact that we can only do so much and we’ve been doing our best, made even more difficult by our illness and lack of support.

    Everyone copes with difficult times differently I know, but it boggles my mind and angers me the lack of support by those closest to you. You have always been a strong person and having faced your illness head on the way you have attests to your true strength and character. What alot of people see is that you’re a rock. What they fail to see is that sometimes rocks crumble. I know you need a soft shoulder to lean your head upon. During these difficult times when you need to cry and scream and rail – don’t hold back. There’s always something in life we could have done more/less, better. Despite his mental illness, he knows you love him and what/how much you’ve done for him. Don’t feel guilty Jas, you’re the last person who should feel that way.

    As for your mom, she too is a strong person. Growing up, it was that strength I admired most about her. In many ways you both remind me of Mama C, as she was a beacon of strength. I know Auntie’s tired, you both have so very much on your plates, have for a long time now. If I lived close by I’d come take care of you and help Auntie. Just let me know if you need my help, I’ll fly out there. Remember I’m here for you, anytime.
    Take care of yourself Cuz. ((HUGS))

    Love and prayers,
    Carol

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